Clubfoot: Treatments – Part II

Last week we discussed what causes clubfoot.  Depending upon what caused the clubfoot and the severity of the clubfoot, there are different levels and types of treatment.  For example, if a child has clubfoot because of the child’s position in the womb, then the foot may be adjusted through physical therapy. Nearly all children with clubfoot are treated with serial castings and braces.  Those who have other complications, such as spina bifida, may need surgery.  Yet, one study showed even children with other medical issues may be able to be also treated through castings and braces, [reference 1] although some studies show that they probably need more intensive treatment. [2]

Treatment usually begins at 1 week old to 2-and-a-half years old.[2]  Most children are treated with the Ponseti method, which involves serial castings.  These are casts that are put on every week to few weeks; each time the castings go on, they slowly change the position of the foot. [1]  For example, a child may have 6 castings done between one and 3 months old.  Of course, if your child is in China, he may not be receiving such treatment.

Once the series of castings are done , the child will usually wear a foot adjunction brace to keep the foot in proper position — much as people wear retainers after having braces on their teeth.  Like a retainer, these shoe braces are initially worn nearly all the time and then just at night. Continue reading »

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Clubfoot: A Special Need of Children from China – Part I

This is part one in a 4-part series on clubfoot.  Next week we will discuss the treatment for clubfoot, the prognosis and what you can expect as a parent of a child with clubfoot.  In addition, we will discuss the types of children who are available and what you can do if you are interested in adopting one of these children who are members of the In His Image program.

Many of the more than 2,000 children who are on the China special needs list have clubfoot.  In general, it is condition that can be readily treated and treatment may begin while the child is still in China.

What is Clubfoot?

It is called congenital talipes equinovarus,  and is one of the most common deformities of the lower limbs [reference 1].  It involves the bone and soft tissue, usually causing one or both feet to be turned sideways or upward. In most cases, a club foot twists the top of the child’s foot downward and inward. If it is severe, the foot will look like it is upside down.

This is congenital malformation, which means the child is born with the condition. Talipes equinovarus (TEV) is a type of clubfoot that occurs in 95% of children with the condition. Continue reading »

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Part III: What Parents Can Do If a Child Has an SPD

If your child is having behavioral problems and seems to have difficulty in every day tasks, you may first want to assess if your child has sensory problems. Many counselors may first require your child to have a complete physical evaluation to rule-out certain physiological and neurological problems. There are self-reporting tests, based on your child’s behavior, which you can take to determine if your child meets one or more criteria of an SPD. EEGs and other brain imaging tests holds promise for making a diagnosis—especially of an auditory processing disorder.

If your child does have an SPD and does require occupational therapy, you will want to be actively involved in the exercises and play. An hour or two per week of therapy will not be as effective as your continuing these learned activities throughout the week with your child. Also, an OT can help you change the environment so that your child can better manage stimuli within your home.

SPDs are often associated with other disorders and disabilities, so other professionals may need to be involved. It is not uncommon for children with SPDs to have other delays and may need to be treated by speech pathologists and other specialists. 

Continue reading »

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Part II Why Children Develop Sensory Processing Disorders

Why children develop SPDs is not clearly understood. The brain functions in these children may be different, and there may be a hereditary component to SPDs. Prenatal environment, including an exposure to alcohol stress hormones, may also increase the risk of SPDs.

Certainly early infanthood experiences may be related to SPDs. Babies who have difficulty with sleep and feeding patterns and are unable to calm themselves are more like to have sensory processing problems as toddlers .

Children living in an underprivileged environment, such as orphanages, are also at an increased risk of SPDs. Parents of Romanian orphans reported that 18 % of their children were hypersensitive to stimuli and another 11 % inappropriately under-responded to stimuli. Studies found that children who spent the first 12 months to 24 years in an orphanage had more problem behaviors and were the most likely to have sensory processing problems. Even when the children’s physical needs are met in an orphanage, including good medical care and proper nutrition, the lack of consistent care and stimulation can lead to sensorimotor delays. Continue reading »

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Sensory Processing Disorders and Your Child: Part I–Description

This is a Part I in a three part series on sensory processing disorders. On Wednesday, I will address why children develop these disorders and on Friday, you, as a parent, can learn more about what you can do for your child.

Many children adopted internationally have what are known as Sensory Processing Disorders (SPDs). These children have problems processing and appropriately responding to stimuli, such as touch and noise. The SPDs can affect children’s behavior and emotions and may impact their ability to learn and socially function. SPDs are found in 5-10% of non-disabled children and in 40 to 88 % of children with disabilities. It is also more prevalent in children with ADHD.

There are different types of SPDs. Some children overreact to stimuli that most others do not find annoying. These are the kids who cannot stand tags in their clothes or being lightly touched; others may have a “melt-down” if their nails are trimmed or their teeth brushed. If the children have auditory processing problems, they may over react to the vacuum cleaner or other “normal” noises. Others with auditory processing problems can hear just fine but can have difficulty understanding what is being said. These are children who are told, “You are not paying attention.” Continue reading »

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Nutrition and the Child from China: Part II

Overall, children from China do very well. In one study in looking at children adopted into Canada from China, in which the children on average were 13 months old when they arrived home, they were doing as well as other children in Canada at three years old. (Incidentally, these children arrived home about 10/11 years ago, when orphan conditions were not as good as they are today.) The children’s receptive language skills—even at a very young age—were just as good as other children. The good news is that children’s receptive language skills—which is the ability to understand what others are saying and respond—are related to positive cognitive and social development. Also, by the time the children were about three years old, they had caught up with their peers in their ability to talk, called expressive language skills[.

So how do children’s language skills relate to nutrition? Children’s ability to understand language is related to the child’s height-to weight ratio as well as the child’s head circumference. A lack of stimulation in the child’s early years in an orphanage can have an impact on physical growth. That means that your child’s growth can be delayed because of lack of stimulation and not just lack of nutrition. The factor that related most to mental development and language skills was the child’s height. In the study of children adopted into Canada, the children from China did have growth spurts, but they stayed a bit shorter than other children their age . The weight of the child seems to have had less impact; in this same study the children’s weight upon arrival home did not indicate a child’s cognitive function at 11 years of age. Continue reading »

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Nutrition and the Child from China

If you listen to the webinar “Food for Thought” on Adoption Learning Partners, featuring Dr. Dana Johnson, you will see that parents are very concerned how the nutritional status of their children may affect their cognitive abilities [1]*. What the parents are really asking is, “Will my child be smart, even if my child had a less than optimum diet while living in the orphanage?” The answer is usually “Yes,” but there are a few things you should know.

Overall, children from China have good nutrient status upon arrival home. In one study Dr. Johnson noted the percentage of children from China who were low or deficient in the following nutrients: iodine or selenium (20%), iron (8%); zinc (50%); and vitamin D (13%). None of the children were deficient in vitamin A, folic acid, or vitamin B 12. Of course, this is only one sampling of children [1]. The dates the children came home were not mentioned but, overall, the care of the children in the orphanages in China has been improving.

For nearly all children living in orphanages, the primary concern is getting enough calories and protein for growth and development. In general, babies in orphanages may receive less than adequate nutrition. In some cases, even if they are given plenty of formula, the children’s bottles are usually propped up, so the children may have limited ability and time to get the milk out of the bottles. Continue reading »

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Nutrition and the Internationally Adopted Child: Sensory and Food Issues

Many children who are adopted internationally have sensory processing issues, which can affect their eating habits. The problem can arise from an overall lack of stimulation in the orphanage or it may be due specifically to what and how the child was fed.

First, many babies are fed formula through nipples with larger holes cut in them. In addition the bottles are usually propped up, so that milk may pour into the child’s mouth. These babies then do not have a chance to use their muscles to suck on a bottle. Next, as the children mature they may be served primarily meals that are mushy or watery. For example, a child may be given a creamy like cereal for breakfast and then watered down soups with rice for lunch and dinner. Fresh fruits and vegetables may hardly enter the child’s diet;  therefore, the child seldom has an opportunity to eat something crunchy or with lots of texture. Even crackers may be softened in hot tea or another beverage. Continue reading »

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Nutrition and the Internationally Adopted Child

This is the first in a series on nutrition and the adopted child.

There has been a growing interest in the nutritional needs of adopted children. There is a webinar  recorded through Adoption Learning Partners and the Spoon Foundation presented by Dr. Dana Johnson called “Food for Thought.”  You can listen to this webinar for a cost of only $15. You will want to listen to this broadcast a few times over, as there is much information packed into one hour.

What you should know regarding your child’s nutritional needs:

  • Typical deficiencies can vary based on child’s country of origin.
  • Deficiencies can cause growth and cognitive delays.
  • While children can “catch up,” the long term effects of early nutritional deficiencies are not clear.
  • Children usually should be tested to determine if they are deficient in some key nutrients.
  • Children upon arrival home often lack iron storage but will not be anemic. However, once they are home and have a large growth spurt, they can become very anemic (From webinar, “Food for Thought.”)

Food is more than just way of providing nutrients. Food is also a way to bond with your child and offer him comfort and familiarity. Continue reading »

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Haiti Act Passed House

Hoyer Statement on Passage of the Help HAITI Act, December 1, 2010

WASHINGTON, DC – House Majority Leader Steny H. Hoyer released the following statement today after the House passed the Help HAITI Act:

“Today, the House passed the Help HAITI Act, an important piece of humanitarian legislation that continues America’s constructive response to the devastating earthquake that struck Haiti early this year. Following the earthquake, more than 1,000 Haitian orphans were brought to the United States by adoptive American families; the bill we passed today ensures that those children, just like all other children adopted from abroad, will have permanent resident status. For the adoptive parents who generously took Haitian orphans into their homes, the guarantee of permanent resident status means that their children will enjoy a full range of legal protections and will no longer be stuck in legal limbo. Continue reading »

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Waiver on Vaccines: International Adoption Simplification Act

On November 30, 2010, President Obama signed the International Adoption Simplification Act.  This Act provides the same waiver for  required vaccination documentation for Hague Convention adoptions as is available for non-Hague adoptions.  Effective immediately, I-800 families can follow the same procedure as used by I-600 families to apply for a vaccination waiver by completing a DS-1981 (Affidavit Concerning Exemption from Immigrant Vaccination Requirements) which must be signed and notarized.  The DS-1981 can be downloaded from:  http://www.state.gov/documents/organization/80002.pdf. The DS-1981 may be revised in the future to indicate that it also applies to Hague cases; until then, the current form will be accepted. Continue reading »

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Domestic Adoption Support Group, Nov 29th

Ben, who is 28 years old and works in a large church ministry  in SC,  was adopted shortly after birth and learned of his adoption story from his parents when he was four years old.  He has dealt with feelings of  grief and loss.  In addition he has had a  desire to know more about his birth family.

You may want hear how someone who grew up in a Christian family could have adoption-related issues.  He will share what he believes you, as adoptive parents, can do to help your child have a more positive sense of self.  If you have adopted internationally,  you  may also want to attend.

Ben has suggestions as to what he believes parents can say and how they can respond to their children’s questions and desire to search for their birth families.

This Adoption Support Group meets every 4th Monday of month at the Vine Community Church, Taylors, SC.

For more information contact Laura Godwin at Nightlight 864 268-0570 or Laura@nightlight.org

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Passage of International Adoption Simplification Act by Congress November 15th

Congress Comes Together to Help Orphans Find Families

Washington, DC – National Council For Adoption (NCFA) is pleased to announce the passage of S. 1376, the International Adoption Simplification Act, an important step forward for orphans awaiting adoption and their families.  On November 15th, 2010, Congress joined together across party lines to pass S.1376, which will allow parents to internationally adopt older children (ages 16 and 17) when adopting a younger sibling. Additionally, S. 1376 will remedy the requirement for needless and potentially dangerous vaccinations for internationally adopted children adopted under the age of ten. Continue reading »

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Medical and Special Services Available for Families in SC

South Carolina Medical Resources

The American Academy of Pediatrics provides a state-by-state directory of health care providers serving adopted children at www.aap.org/sections/adoption/SOAFCAdoptionDirectory2.pdf. The list includes physicians in private practice as well as those who provide services for internationally adopted children.

MUSC International Adoption Clinic at MUSC Children’s Hospital

Charleston, SC
http://www.musckids.com/about/dept_prog/adoption.htm

TEFRA

This program provides financial resources through Medicaid to pay for medical and therapeutic interventions and prescriptions for qualified children. Continue reading »

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Tax Information for those Finalizing Adoptions in SC

(The following post is from Nightlight’s Adoption Funding & Adoption Grants Resource Packet, available at our Adoption Funding Resources page.)

Post Adoption Financial and Other Resources

Tax Credit: $13,170

Great news: The adoption tax credit has increased, and you could get a tax refund!!!

The Adoption Tax Credit has been extended another year, and starting this year, it has increased to $13,170. So if you adopted this year or next, you can receive not only a tax credit of $13,170 but for the first time, the tax credit is refundable. Except for the increase in the amount of credit you receive and the fact that the tax credit is refundable, the previous rules remain essentially the same.

What this means to, you, the adoptive families:

The adoption tax credit will not sunset on December 31, 2010; it has been extended to December 31, 2011.

You may apply up to $13,170 of your adoption expenses toward your federal taxes when you file your 2010 or 2011 taxes. Continue reading »

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